Ostomy Reversal Timeline?

I had my (emergency) transverse colostomy on December 1st, after a bout with diverticulitis wouldn’t resolve, abscesses formed and ruptured.  The doc said we need to wait 6-7 months, at least, before reversing it.  I am wondering what others’ experience is in regards to the timeline for reversal.  It seems to me a good idea to wait until everything is healed and strong, yet it also seems like it would be good to do it while the body still remembers how to poop!
Anyone have any ideas/ input (it always feels strange using the word "input" here…lol..I certainly don’t need any more otuput)?  I would love to hear of others’ experiences.  On one hand I can’t wait, on the other, I cannot believe I have to have another surgery.  I don’t think the surgeon did any resection; I was too infected.  He just put in drains, and made the colostomy.
sigh……….
thanks,
Jayne

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Ostomy Reversal Timeline?

ILEOSTOMY REVERSAL AFTER 18 YEARS – I’m Excited But Freaking

I have had an ileostomy for 18 years.  I was diagnosed with UC and was incredibly ill for years hence the bag…  I was told I could consider the j pouch op but after years of ill health and then feeling great finally I decided to forgo more surgery and just live with the bag.  

Then last week, I spoke to a specislist about a reversal.  He told me he could join me up without the jpouch and reckons it should all be ok.  I have booked it in for 10 December.  Now I am soooo nervous and really hope I am doing the right thing.  To think I could be ‘normal’ again after years of living with a bag is so exciting but the thought that I could be really unwell again is on my mind and I am scared.  My marriage fell apart 5 years ago, and I am single.  I do not date because I don’t know how to tell someone about the bag as I did tell one guy I really liked and he dumped me the very next day!  I guess the thought that I could be normal is the thing that I am excited about.

Does anyone out there have any experience with this?  As that part of my body hasnt worked for 18 years I am needed to know if it will work again etc.  The doc said it will take a bit to get used to but should be a good outcome.

Any feedback is welcome.

Thanks x

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ILEOSTOMY REVERSAL AFTER 18 YEARS – I’m Excited But Freaking

Reversal

I have been going through all of the Blogs..Came across one that said they did not want a reversal, because of the pain afterwards….I am due for a reversal in about 2 months, can you please tell me what kind of pain I can expect, other then post surgical????/
Now, I am becoming apprehensive, probably should ask the doctor when i see him in July..please respond if you have any uplifting comments.. Thanks Betty

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Reversal

Reversal On June 24th

I am having my reversal surgery in a little over a week on June 24th and I am really nervous since I had trouble with the first surgery! It was actually two emergency surgeries.. resulting in the colostomy bag! But it saved my life so I can’t be to fussy about it.. The first surgeries I was in the hospital 9 days!! I am trying to find out about an average hospital stay for a reversal! I would like to know how bad the pain is.. how bad is the first bowel movement?? Mainly just different stories on what to expect!! I don’t have Chron’s..  or any other disease.. My emergency surgeries were because I had over 8 holes in my lower large intestine.. I had been having trouble with BM’s (I would get nauseated, almost pass out, sweat, pain, and they were not hard ones.. they were loose stools.. too much info I know) the barium and stool together turned into hard rocks but I was having problems before hence the reason for the barium test! And they think the "rocks" made the holes bigger but have no explanation for why they were there!! I had barium, feces, stomach acid and infection all in my abdomen.. I was never really sick.. just never felt really well and didn’t have much energy.. just only when I went to the bathroom! After the 9 days in the hospital and 2 months healing at home… This surgery has me scared and nervous! Any and all comments and suggestions are welcome!! Thanks in advance!!!

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Reversal On June 24th

I HAD MY REVERSAL DONE

I was wondering if someone could tell me exactly what its like to have a colostomy and give me all the details. Good and bad. Ive had and ileostomy since 2011 and my doctor is talking about me getting a colostomy. I would really just like to keep the ileostomy but he is very much against that. So Im just very interested from hearing from someone who has one instead of everything Ive read. Please be honest with me! Thankyou< >  < >  < >  < >

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I HAD MY REVERSAL DONE

Successful Reversal

The night of August 16th was probably the most painful night of my life. Starting at 5PM and finally at 4AM on the 17th I let my wife call 911. I was brought to the hospital and diagnosed as having a perforated colon from diverticulitus. If I wasn’t on so much morphine I probably would have flipped out. Finally that afternoon they found air floating around my chest area and decided I had to have surgery. I was well prepped for it as far as info goes so I knew I would wake up with a bag. My last words before going out in the OR were "where is the music, there is always music on tv". They put on the hard rock I asked for. After the surgery I couldn’t even look at the bag for 5 days. I wanted to go home so on the 6th day the stoma nurse taught me how to manage it and I went home. Over the next ten weeks I can’t even describe the emotion but I must say I think I handled it well. I went back to work for a few hours a day even while I was in the hospital (laptop and phone). Ten weeks later I had the reversal. I am now almost 5 weeks post reversal and am doing well and have been back to work for three weeks (light duty and 4 -5 hours a day, I am in sales so it’s easy to drive around and visit accounts).

While I had the bag I told everyone I was involved with and was amazed how many people told me about their experience with someone in the family that had a similar situation. I even went on a four day golf trip with the bag on and it worked out OK as well. So besides the ugly scars on my belly I think I am going to be OK.By the way I am 59 years old and in good health besides this.

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Successful Reversal

3 Months Post Ileostomy Reversal Update

I wanted to put a quick update here to let those interested know how I’m doing since my ileostomy reversal 3 months ago.
I had good progress for the first 2 months but the past 3 weeks seem to have gone backwards.  I’m still in a lot of pain and spending too much time in the bathroom (8 – 12 x daily).  I am housebound all morning and if I need to go out at all, I fast beforehand.  Gas and cramping are a huge problem!

The surgeon is fairly happy with the way things are going.  He told me 2 weeks ago that recovery could take 6 – 12 months – that was a downer.
I also have a huge swelling on my lower left abdomin – I look 6 months pregnant!  Surgeon and Dr say it’s not a hernia (yet) but they are watching it closely.  
I’m still careful with my diet but I can eat tomatoes and lettuce in moderation, some vegies and peanuts!
I have to admit, there are days when I wonder if I was better off with the bag, but I do believe things will get better, eventually.  

I had been taking Imodium (Loperamide) and Percacet (Oxycocet) up until today.  My doc wants me to try a 2 new meds – Tramacet (Tramadol) for pain and Normacol (sterculia gum) for bulking fibre to help reduce/bulk bm’s.  Has anyone tried either of these before?

Thanks and love to you all,
Lorraine

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3 Months Post Ileostomy Reversal Update

I HAD MY REVERSAL DONE

Hi guys, I know I’ve been gone for a while but with good reason!!
Most of you know my story, of how ai got to be an ostomate, read my profile thingy, so I won’t bore you with the rest.
Here’s my story of what I just went through and my reversal.

Since my original surgey (hysterectomy) in October when Dr. Malpractice cut my colon, I have had a drainage of pus from my vagina and some horrible pelvic pain.
I went in and had a barium enema, it showed no fistula but i was still sick. So they re-did the test and as soon as the barium went in, it immidiately and violently flushed out my vagina.
That made me even sicker so the next morning, I was admitted into the hospital to treat the infection before they could repair the fistula and do the reversal.
I was given high dose antibiotics thru IV and Dilaudid for pain over the next week.
Then on the 15th of Feb, they decided to take me in.
They were able to do the reversal but just barely. The original fiasco surgery in October, when th edoc cut my colon and I laid there for 77 hrs dying, when they removed part of the colon and gave me the ostomy, they did not remove the part of colon that had the cut in it. The piece of colon was still loaded with infection and it laid over the vaginal cuff, which was inproperly sewn, so that E.Coli infection has set in my gut all this time. It was so bad, that my one ramaining ovary had to be removed, so now I am in menopause at 40.
If I do get put on hormones, I have to be on Lovenex injections for the rest of my life due to my Factor V Leiden defiency.
While I am so thrilled and feel so blessed to have had my reversal, I am temperarily devistated from all this.
I love and have missed my awesome friends so much and ai wasn’t avoiding y’all, just trying to "heal and deal". lol

As far as the reversal, it couldn’t have gone any better. I had top surgeons in the US, one vascular surgeon and one GYN/Oncologist who is a genius.
My belly hurts from th eincisions but my BM’s are awesome, I have had NO incontenence, no accidents and only really go about once a day now. I eat whatever, just healthy, salads, fruits, etc.
I will ALWAYS be an osty, if y’all will have me. Smile

I love y’all….Hannah

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I HAD MY REVERSAL DONE

I Refused The Reversal

well hiya to all off  you id like to  tell you all about my experience   off  the day
On wednesday the 1st feb 2012 i was due to go have a illio reversal to be done
well i chickened out off it i refused to have it  as after reading all your comments on the reversal  were they connect  the small intestine to  the  butt  i couldnt go thro with it .

as without the large bowl id be running to the john 24/7 to empty out and i wasnt  lookiing forward to  doing that so i told my surgeon not to do it .

i asked for the j pouch but was told cant have it done as im to old  for  the surgury so it was a case off the illio or nothing  .

ive come to accept  the bag now at a push  but cant get over  the thought that if  he had off been honest with me before he took my large bowl away id never off agreed to the operation  in the first place  if id off known the truth regarding my illness

i feel a outcast now ive lost all  my friends and cant do the things i used to do  this bag has ruined my life completly

the doors have perminently closed  on me now im dreading
living my life as i am now .
to be totally truthful i wish i had not come out off surgury alive .

thats my honest thoughts  
my lifes a complete mess but still who cares i dont so why should anyone else care
as the doc says im well past my sell by date
take care every one
thanks for ready  this
im just having a bad day right now
regards

teddyuk1946

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I Refused The Reversal

Ostomy Reversal Question

Hope someone can help. Had a colostomy last May. Went in for reversal operation Oct. 5th. OP did not go well and required two emergency operations during the 6 weeks I was hospitalized. Last op was 7 weeks ago. I suffer from daily diarrhea and actually lose control about every other day. Dr. ordered stool tests for c. diff which I have had and know this is not c. diff. What is going on?

Thanks/Don

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Ostomy Reversal Question